Macy

Macy

Wednesday, June 22, 2011

G Tube

We had a really good appointment today with the Pediatric Surgeon.  We have scheduled Macy's surgery to get her G tube put in on July 5th.  They showed me what the "button" looks like today, and it is really pretty small and flush to the skin.  They don't do the kind anymore where you have a tube hanging out or anything so this is really discreet.  No one will even know that she has it when she has clothes on.    Not that I would care if people could see it....I have gotten use to the stares from strangers when they notice her "floppy thumb" flopping around as she is playing with a toy, etc.  Anyways, it looks pretty easy to use and I can't wait to start getting some full nutrition into Macy and not having to worry if she is getting enough!

The surgery itself will only take about 20-25 minutes, which is nice because I am sure I will be a nervous wreck the whole time.  She will also have to stay the night...maybe 2.  They need to make sure she is tolerating the feeds because a G tube can make reflux worse, etc.  They will also have to train Adam and I how to use it, and change the button out eventually.  Once healed it will need to be changed every 4-6 months.  I am looking at ordering some "button buddies" to decrease the granulation tissue and leakage; and those should help.

A nice end to the appointment was that usually Macy goes to Devos in Grand Rapids for everything, but this Specialist is out of Bronson Hospital in Kzoo; which is where my husband (Adam) works.  It was nice to be able to meet him for lunch today after our appt. so Macy could spend some mid-day time with her Daddy!

Macy has a feeding therapy appt. on Sat. and next Wed.  I actually think that is her only appt. next week so that is good.  I love it when we get a week off of appointments or only have 1; then 4th of July and fun times camping with the family!  Can't wait!
Macy being silly with her dress hanging off her head!

Take care,

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