Macy

Macy

Wednesday, June 8, 2011

Kidney & Heart

Today Macy had a kidney ultrasound, and it went well.  First off; she did awesome!!!  She just laid there and looked at the lights, and was calm as can be.  We met with her kidney specialist after and she said her kidneys are growing well, no dilation, and they seem to be functioning good.  She said in-spite of Macy's feeding issues she looks good in terms of she doesn't look dehydrated or skinny at all, and she looks pretty proportionate.  Boy, do we work hard in that department; about 80%-90% of my life right now is feeding Macy and getting her to take a nap so I can feed her so it is good to hear that is paying off.  I can't wait for the day that I can sleep more than 2-3 hours in a row a night, and get more than a total of 4-5 hours of sleep altogether at night.  


Macy also had a echocardiagram done.  I am a little worried just because they don't tell you anything when they do it.  They just say they will have a cardiologist look over the images and someone will call in the next few days.  That always freaks me out and I always convince myself that means there is something wrong.  Deep breathe......I just hope and pray her heart is healthy because we definitely don't need 1 more thing to worry about.


Macy originally had her 1st feeding therapy session scheduled for tomorrow after being postponed for 1 month.  They called today saying her appointment is now the 15th???  They said the contracted out therapist taking over for the lady she was supposed to see doesn't do feeding therapy so they are just switching her over to someone else's caseload.........couldn't they have done that a month ago?  I don't think they realize how much this effects kids.  If Macy started when she was supposed to she might not have the need to get a stomach tube put in.


Anywho, 2 more days until Friday!!!  I love weekends and hopefully it's not too hot so we can go to the lake!

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