Wednesday, July 20, 2011

Eating and another Surgery

Macy has really picked up eating the last few days!  Sometimes she starts out a little hesitant but by the end of the feeding session she is opening her mouth huge and leaning towards the spoon!  She is up to eating 1/2 to 3/4 of a stage 1 puree per feeding session so that is a huge improvement.  I even switched up some flavors because I ran out of bananas the other day.  I gave her prunes mixed with squash and she didn't seem to mind at all.  As for the tube feedings; she seems to be doing better with those too.  We backed off the ml/hr at night to 40ml/hr (she is supposed to get 50ml/hr); and found that it helps A LOT if we put her boppy in her crib for her to sleep in.  It is the cuddle U kind where there is a strap that comes up and straps her in so she cannot slide down.  She went from waking up from her reflux bothering her every hour or two; to only fussing a little bit maybe 1 time the whole night now.  It must put her at the angle she needs to keep her reflux at bay.  I really didn't want to have to do that because she loves rolling around in her crib at night and sleeping on her belly; but it is more important that she gets her nutrients.  We have a crib wedge (30 degree angle) in there, but she just doesn't stay on it.  She rolls off constantly so it doesn't work .  We also put her in the boppy during the day during her 3 bolus feeds; and if she stays in there for 15-20 min. after she won't puke.  Glad we got that figured out for now anyways.

So we are almost 1 week away from Macy's hand surgery.  It seems like we just got home from the hospital from her last surgery; but it has been 2 weeks.  I was nervous for the last one and that was only a 30 min. surgery.  This one is going to be 3-4 hours, and is very complex.  She will be in a full arm cast (from her shoulder to the tip of her fingers) for 4-8 weeks.  I am not looking forward to when she wakes up from anesthesia this time....especially when she discovers that she cannot move her arm.  2 weeks after that cast comes off she will have the other hand done and another full arm cast for 4-8 weeks.  Atleast she will be done with it all and have her casts off by the holidays!  I just hope it doesn't delay her in learning to walk...I can picture her now trying to balance with a big cast on.  I remember when one of my nephew's was learning to walk.  He would have to wave really fast as he walked to keep balance at was really cute!  Macy will have to figure something out; she's a fighter though so she will make due.  It is good for her to use her problem solving skills anyways, right?  :)

It has been HOT here this week.  Mid 90's atleast with a heat index that's higher.  We went to the lake a few times but it is too hot and muggy to stay too long.  We brought the paddle boat out this time, but haven't taken Macy on it yet because it is so hot.  Maybe in the fall when it gets a little cooler.

Sent out the invitations for Macy's 1st birthday party the other day!  Wow, she is getting so big!  I went and bought the decorations, etc. and decided on the Disney Princess theme (surprise surprise!).  She is our little princess so it is fitting.

take care,

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