Wednesday, August 10, 2011

Macy did great at feeding therapy today!  She drank water from a straw for the therapist for the first time.  She has been drinking out of a straw at home for about a week now, but for some reason a lot of times what she does at home she doesn't do at feeding therapy.....makes me look like a liar, little stinker!  :)  She ate her bananas pretty good too!  She is up to a stage 2 puree a day.  We even tried fruit and oatmeal puree which is a lot thicker yesterday and she ate it pretty good.  Macy is tolerating her tube feeds a bit better now that we started the AR (added rice starch) formula.  She is not puking much at all anymore, and is sleeping well at night.  Let's hope that continues.

We did get a call from the GI specialist office the other day that her liver ultrasound looked good!  No tumors so that is good news.

Macy is scheduled to get her cast off on Aug. 18th.  She may be getting a splint or something after that for a few weeks, but atleast we will be able to see her hand.  I have been able to see her new thumb moving with her other fingers now and again which is exciting to see.

I have been going back and forth in my mind in whether to book a trip to Orlando or not in the next month or two.  We were going to go to Sea World, and Universal (I haven't been to either in about 20 years) but after looking at their website it looks like there would be a lot we wouldn't be able to do with a baby.  So then we were thinking maybe we should just go to Disney.  We know that place like the back of our hands so we would know where to spend our time so Macy can enjoy it too; but if we went we would only be able to go for 3 days, and I am not sure if it is worth flying all the way down there for 3 days.  We will see.  I figure when we go to her appt. in Minnesota in October we can spend a day at Mall of America.  Maybe that will have to be enough for now.

We should be hearing about appeal #2 soon from our insurance company.  Their 15 cal. days ends this Friday.  I should just call, but I am afraid of what I will find out.  Oh well, I just gotta suck it up and do it.

take care,
Macy showing how wide she can open (unless there is food coming towards her...then only little bites!)

Macy chewing on her elephant's foot

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