Thursday, September 8, 2011

Traverse City Trip and more!

Getting ready for bedtime in the camper

Macy in her 'hop n pop' at the camp site
Well we are home now after a nice little trip up to Traverse City!  We had a nice time camping at the state park, went to the beach, and had a nice dinner out.  One of the days was really cold and windy so we had to break out the winter hat and mittens for Macy.  She looked so cute (as always!).
Macy eating a veggie stick

Macy after biting off a piece of veggie stick...she is unsure if she wants to swallow it or spit it out

The Marina at Grand Traverse Bay

It got a little windy so Adam and Macy are hanging out in our little beach cabana

Family Photo in the wind

We have been pretty lucky the last few weeks in terms of nothing has really been going on (which is good for us).  Macy has had feeding therapy and that's about it.  She has seemed to plateau in her feeding though which worries me.  I have her feeding sessions around 15-20 min. a piece and don't want to go much longer than that.  I just can't seem to get her to take bigger bites.  She leans towards the spoon and takes the bite herself; yet at the same time will not let the spoon get ALL the way in her mouth...she does this thing where she blocks it with her tongue, and kinda keeps her tongue at the roof of her mouth instead of putting the spoon on her tongue.  Her therapist said we 
need to backpedal and start doing really small bites again to see if she will start letting the whole spoon in.  Another thing she started doing is as she drinks water out of a straws she spits it out at the same time, and thinks it's hilarious.  So we'll have to go back to the straw drinking beginners lessons with that too.  Little stinker!  :)
Macy tasting a green and purple frosted cupcake
Macy with her hat and mittens on enjoying the chilly outdoors

Macy and daddy...she lost a mitten!

Macy fell asleep on my lap around the camp fire after a long day!

Macy's new thumb is looking pretty good.  Almost all of the stitches have dissolved except the 2 that need to be taken out in a couple weeks.  I can feel there is some hard scar tissue around the meat part of the thumb on her hand.  It seems to prevent her from fulling moving her thumb at the joint that connects the metacarpal to the wrist (mp joint). Her Dr. said he may have to go in in the future and remove some scar tissue.  I am hoping it is just still healing because it has really only been about 5 weeks since her surgery.

All of Macy's surgeries, etc. the last few months have really put her behind in the mobility department.  She is still mostly a roller.  She can creep/crawl but only does it if she really wants something.  And she can pull herself up into a standing position if she hangs onto my fingers; but has never tried to do it on a piece of furniture or anything.  She seems to be eons away from walking.  She will be getting surgery on her other hand in a month or two which will continue to put her behind.  Hopefully once we get these hand surgeries and full arms casts out of the way we can focus on getting her back on track by her 18 month milestone mark.

9 more days until Macy's birthday!  Can't wait!  The fall season is our favorite time of year so having Macy's birthday in September just makes it that much better!  When we got home yesterday we got out all of our fall harvest decorations and I decorated the house!  Adam wanted to decorate for Halloween already; but I told him he has to wait until October 1st.  I did find my costume online the other day for this year already....I am excited to get it.  It's a good one! (yes, we are dorks----we love halloween!).
Macy playing in her little baby travel bed....she still fits! 

Our precious little girl still sleeping in the morning!
Well that's our week in a nutshell.  One nice thing to look forward to is we booked a Disney World vacation for February.  It should be a good time, and I think Macy will have fun.  We figure it is our last chance to go before we get busy again.  We are planning on doing In Vitro with PGD and HLA matching as soon as we get the results of Macy's gene sequencing.  More on that though another time.

take care,

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