Thursday, August 30, 2012

Holy Moley Guacamole'!

Okay.  So I have a lot to catch up on.  Even though it's only been a couple days.  This will probably be a pretty long post.

First off, today (8/29/12) is Adam and I's 6 year wedding anniversary!  yeah!  Can't believe it's been 6 years already; time really goes by so fast.  Couldn't ask for a better husband and daddy to Macy.  I honestly wouldn't change a single thing about him.  Me and Macy are really lucky! 

Macy: I wanted to do a quick update head to toe.  Her reflux is doing great.  It is still controlled very well under meds.  I love that they have OTC generic prevacid now, because it is so much cheaper.  She is doing pretty well eating.  Trying to expand her foods lately and it is going okay.  She still won't eat many vegetables.  What is holding us back the most is still that she only drinks water so we will still have the G tube for a while to give her Vit. D milk.  We do need to change her button soon though.

I have noticed for a while that she seems to be behind in speech so I did call Early-On to see if they will come work with her to get her caught up; but they were under-staffed this summer and said they will try to send someone out this fall when the school year starts.  So that should be in the next month or so.  I'm not overly concerned about it.  It is apparent that she is really smart so she'll catch on when she's ready.  One thing about when your in our kind of situation is it actually takes the pressure off of trying to make sure your kid is the first one to do everything.  It seems like so many push their kids so hard just so they can say they walked at 9 months or were potty trained by the age of 2 or whatever.  We don't have that.  We just want Macy to be happy.

The hand she had her pollicization on is doing awesome.  She uses it very well, and her new thumb is really quite strong.  We were waiting to see if we could tell if she was left or right handed (Adam and I are both left handed) to determine if we are going to have surgery on the right hand or not.  If she was a lefty we were going to leave it alone.  A righty would mean surgery.  She doesn't need pollicization on that hand, just some muscle transfers to strengthen the joint.  If we don't have surgery she won't be able to grip a pencil.  And it looks like she is a righty so we will need to start thinking of that surgery...probably next year, but before preschool starts.  

Kidneys doing well, and still watching the right hip.  Sometimes when I pick her up I can feel it click so hopefully it will grow into place over the next 6 months and won't give her any more issues.  And she'll get her blood work in a few weeks so we will know what her counts are.  We will also probably need to schedule her bone marrow biopsy (which I am completely NOT looking forward to).

We are having Macy's birthday party this weekend.  Should be a lot of fun, and are having it at the Air Zoo.  Should be a good time!

We have been busy the last few weeks with a lot of projects around the house.  It has been very busy but nice at the same time because it has kept my mind off the IVF.  I have become a super crafter!  hehe.


I had my blood work and ultrasound today.  Everything went well!  I actually have 30 follicles right now.  Yes...30!  Craziness.  They said many of them are about 8 or 9mm which is really good for your first ultrasound after starting stims.  I don't really know what that means; but if they say it's good then I guess it's good.  Right now they said everything looks good and my uterine lining is already almost where it needs to be (in terms of thickness) for retrieval as well.  Personally, I am a little worried about Ovarian Hyperstimulation Syndrome.  I have a feeling that if out of anything that could be a complication for me; that would probably be it.  But the Dr. hasn't said anything about being concerned at this point so I guess I won't worry.  They said if my bloodwork showed anything that would change my dosage of meds they would call; and they didn't so I guess all was well.  They will also have a better idea of how many follicles they will have to work with at my next ultrasound which is Friday.  Shots are still going well.  I had to do 4 last night, and it wasn't bad at all.

So here are some cute pic's of Macy that I finally downloaded on the computer.
Macy LOVES to wear sunglasses.  These are her tinkerbell pair she carries around with her.  And she also loves night gowns right now too!

Giving her "disapproval" face.  This is her little area from when we went camping about a month ago.  She doesn't like being contained...even though I was in there with her.

Splashing in her kiddie pool camping.  We don't like her going in the lake water; especially this year with the hot weather causing all the e coli issues.

Trying to feed Bela, but didn't quite make it.

Helping clean up
Anywho, that's all for now.  Hopefully my ultrasound goes well on Friday and am looking forward to Macy's party!  :)

take care,

Wednesday, August 22, 2012

Grow Follies grow!

Just a reminder that the below information talks about reproduction and is not suitable for children to read

Okay so first off, I wanted to share a SUPER cute picture of Macy I took today.  This was the adorable face I had waiting home for me when I got back from my ultrasound this morning.  Thanks for watching her mom!  :)

She was playing dress up.  She loves tutus still, she put her birthday crown from last year on, and had a scarf hanging off her shoulder.  She is soooo cute!  I just love it!

She does have her blood draw coming up in a couple weeks.  I always dread that so much.  I will make sure to use the emla cream this time.  Last draw I didn't have time because she had a bunch of other appointments that day for her hip, kidney, etc. and it was not fun, because they couldn't get a vein and poked her 8-10 times and got nothing out of the first arm.  Let's hope for good blood counts!  And hopefully her ANC (absolute neutrophil count) is holding steady and not getting too far below the normal range.  That's the one count that has me a little worried as it has been creeping just out of the normal range.

She will also have her 2 year well child in a few weeks.  Her Ped moved to a different office about 20 min. further away than where she was before, so it'll be a good 35-40 min. drive now.  I wanted to stick with her since Macy's history/disease is so complicated.  I don't really want to start over with someone else.  I also made her her first dental appointment.  Not till Feb. though.  It is a pediatric special needs dentist through the children's hospital.  So they will coordinate her dental care with her procedures at the hospital.  For example, if she needed any dental work (am thinking of getting sealants put on her teeth to protect them from tooth decay), they will come to the hospital and do it when she is under anesthesia for her bone marrow biopsy.  So that is nice.

I found out today our egg retrieval will more than likely be Saturday, Sept. 8th, which puts the transfer on Sept. 13th.  When you do PGD you have to do a 5 day transfer instead of a 3 day because the biopsies are done on day 3.  

Because of these dates we need to cancel/move Macy's birthday party to a different day. You have to be on bedrest for 2 days following transfer.  Since the weekend before transfer (8th is the egg retreival) we are thinking of doing it Labor Day weekend (probably on Labor Day) instead.  Kinda a bummer, but not too big of a deal.  Adam and I can still do something special with her on her b-day hopefully (sunday 16th).  The worry is if the retrieval got pushed to the 14th, then I would not be able to participate in her bday so that's why we are moving it.  However, I have a feeling that if anything it may be a day earlier than expected.  We will see.  

So there was all good news at my appointment today.  My ultrasound went well.  No cysts on the ovaries (lupron can cause cysts sometimes), and I have 12 follicles on the right, and 8-10 on the left. So right now 20-22 follicles (or sort of pre-follicles.  each follicle has the potential to hold 1 mature egg) and that's with the suppression of the lupron.  That doesn't mean I'll have that many for retrieval necessarily, but it is a good starting point for now.  Haven't started the stimulation meds yet which I start Monday.  Originally  I was going to start them tonight or tomorrow, but they pushed it back a little due to scheduling to make sure the biopsies landed mid-week for the PGD embryologist coming from Chicago.  That way the labs will be done during the week even though that puts my retrieval on a Saturday, but that's totally fine (alteast Adam won't have to take a day off work).

take care,

Monday, August 20, 2012

Phase 2

Just a word of discretion that the following contents is related to reproduction, and may not be suitable for children to read

Okay, so things have been going well lately.  I wanted to do a quick IVF and Macy update while she is still taking a nap.

I have been on lupron now for 14 days (as of today).  The shots have been getting much easier since that first day.  I have been doing them all myself, and rarely get nervous about it anymore.  One day we went out to dinner in town (when I say in town I usually mean Grandville...hehe.  Since it is about a 30 min. drive for us all highway; to me that is the city now!  :) ).  Anywho, so we went to dinner and I do my shot at 8pm every night.  I knew it would be close so I brought my kit with me.  I ended up having to give myself the shot in the car on the highway on the way home (as a passenger of course...Adam was driving).  So I guess I consider myself a pro now!  haha.

So today I started my menstrual cycle (sorry TMI); but that is what we were waiting for in order to schedule our next phase of IVF.  So my baseline ultrasound is on Wednesday morning.  They will check to make sure my ovaries are suppressed with the meds, and will look for cysts (lupron can cause ovarian cysts).  If all is good I will start my stim's (stimulation meds....Follistim and Menopur) on Thursday.  So for 2 days (thursday and friday) I will need to do 3 injections per night.  Then after that just 2 injections per night (glad I am use to the 1 now atleast).  

Once I start that on Thursday I will need to get an ultrasound and bloodwork done about every other day for 7-10 days or so depending on how I am responding to the meds.  Then the egg retrieval will happen.  Let's hope I respond well and have lots of follicles (each follicle usually contains an egg)!  I am trying to think of this cycle as a trial cycle to find out how my body responds to everything.  That way I won't be overly disappointed if the first cycle doesn't work out.

Macy: I can't believe Macy will be 2 in a couple of weeks!  That is crazy!  She is growing up way too fast.  When we were at the Dr. a while ago the Dr. commented on how she is growing so fast and is a little girl now (no longer a baby when she saw her last).  It's so is amazing to see her personality coming out more and more as she gets older.  She's such a great kiddo!  She will be a terrific big sister, and I am very excited that she could have a sibling next year!  She does so good with her cousin Lucas (who is 3 months).

Last weekend Macy went up north to the Stewart Farm with Adam for the night.  They had fun riding quads, flying kites, and hanging out with Gma and Papa.  I was supposed to take time and relax, but ended up painting the whole day.  I atleast was able to finish Macy's room because we don't paint when she is in the house (bc of fumes). I don't like her being around any type of chemicals due to her FA.

Macy is up from her nap so better go.  Will update later after my ultrasound this week.

take care,

Wednesday, August 8, 2012

First "shot" not as planned

Last night was day 1 of lupron shots for me.  To tell the truth in the whole prep of doing IVF, doing the stomach shots weren't much on my radar.  They were more of an after-thought to say the least.  I don't mind getting my blood drawn, etc. and I have used the pens to prick my finger to test my blood sugar without a problem so this should have been easy.

I watched the how-to video, and put it next to me on the counter.  Followed the prep, and draw-up directions to a T (minus a little mishap where some sprayed out of the vial as I was pulling the needle out....oops!  Hopefully there's some extra in there).  Then, as I held the needle in one hand, and my skin in the other; I was very surprised when my hand wouldn't move.  I couldn't do it.  There is just something about holding a needle yourself, and having to stab it in your own stomach.  I froze.

So I stood there for literally 10 min. skin pinched and ready to go, but the other hand not moving.  I counted down in my head, 3, 2, 1.....nothing.  Counted back from 10......nothing.  All of a sudden I started realizing that I wasn't going to do it....and it was only the FIRST day.  I have to do it everyday from now on, and knew I was in trouble.

So I yelled for Adam.  He came in and volunteered to do it.  I carefully transferred the syringe in his hand.  As he came near me with it I freaked out and took it back.  We continued this process of handing it back and forth for another 10 minutes.  

Finally, I said okay.  I'll hold the skin, and look up at the ceiling and you jab it in.  So, I looked up said okay.  And he did it.  Whew!  It didn't hurt at all (not even a bee sting), and I knew it wouldn't hurt but I couldn't help it.  I got myself all worked up.

I am really hoping I can do it myself tonight.  But if not, Adam will have to do it for me every night.  Hopefully it won't be a 30 min. charade again though.  (exhale). 

Needle after the injection

Wish me luck!

take care,