Macy

Macy

Friday, September 28, 2012

Hematology/Oncology Appt. 9/27/12

Macy had her hematology/Oncology appointment yesterday.  They did a good job drawing her blood this time.  Since it was her only appointment of the day I was able to put some emla cream on her before we left so hopefully she didn't feel anything.  They were able to get her blood pressure for the first time!!!  Usually she is so upset with them touching her and putting the cuff on her that they can never get a reading.  She did really good this time.  Was a little anxious, but let them do everything they needed.  We have been reading a 'Dora goes to the Doctor' book a lot lately, and I am hoping that helps, because she loves Dora!  :) 

Her blood counts were:
WBC normal(6-18)        
Macy  9.96                                               

 Hgb  (10-14)
12

 Platelets (140,000-400,000)
222,000

ANC  (1500-6000)
2,340

MCV  (74-90)
 88

So everything looks good right now which is great, because if her numbers started falling below the normal range already that would add so much more pressure with getting our healthy match for her with IVF.  We meet with our Dr. on 10/8 to discuss our next cycle.  We will more than likely start with my Oct. cycle (end of Oct.), but unless they change my protocol from last time that will put the egg retrieval, etc. in December.  Seems like so far away.

We have a nice break in Macy's appointments too till December!  So that is good for her.  Except I need to get her in soon to get her flu shot...but putting that off but needs to get done!

take care,
Jenn

Monday, September 24, 2012

Official Frowny Face

Dr. office just called and my blood test came back negative.  :(  HCG level was less than 2.  Hopefully better luck next time.  Our follow up appointment is 10/8/12.  Hoping we can come up with a good game plan to maximize our chances of success before we run out of money.  We only have enough for 2 more cycles.  :(

take care,
Jenn

Friday, September 21, 2012

Going Crazy

Since I am so impatient I have been doing a HPT every morning for the past few days.  Again this morning it was negative.  I am starting to worry that this cycle didn't work.  We'll know for sure on Monday after my blood draw, but I just have a feeling.  I'm not excited to start all over again; but atleast we know we got this far this time, we can do again.

Macy news:
So on Tuesday Macy ripped her G tube out of her stomach.  She must have done it in the middle of the night because the hole was already closed so much I couldn't get it back in so we had to make a mad dash to the hospital.  They were able to stretch the hole and eventually get it back in.  Kinda on a funny side note, on the way to the hospital I gave her a pack of fruit snacks because with all the rush of the morning she hadn't eaten anything.  Then I remembered she had a hole in her stomach.  I had to reach back and get them back from her (which she didn't like) because I didn't want her to eat them and have the juice just come right back out the hole. 

Macy had her 2 year well child yesterday.  She is doing well, except we already knew her expressive speech is behind.  I can't remember exactly her stats, but I think her height was 38%, weight 8%, and head 20% or something around there.  She was always 2% for weight, but I guess the USA just changed their growth charts to match the rest of the worlds.  Her Ped said Americans are so overweight (including the kids) that it was making kids that were "normal" weight look like they were failure to thrive.  So the new charts bumped her up to the 8th percentile.  YEAH!!!!

This is going to be a long weekend waiting for my blood work Monday; either way it turns out atleast we can start moving forward whether it's good news (baby) or planning for our next cycle.  I hate being in limbo.

take care,
Jenn

Saturday, September 15, 2012

Transfer Update

Out of our 10 embryos we had 1 that was an HLA match for Macy. And by some miracle it was also FA free!!!!  So we transferred our 1 this morning and I'm at home resting. Now we just need this one to stick. We also had 4 that were healthy and not matches so we froze those for future kiddos!!!  2 came back with inconclusive results, and 3 had FA.

Whew!  Now we wait.  Thank you to everyone for your thoughts and prayers through this roller coaster we've been on lately. It is much appreciated.

Take care
Jenn

Friday, September 14, 2012

All comes down to tomorrow!

So tomorrow is the big day.  I feel like everything has led up to tomorrow deciding our fate.  I know that's not true, it just feels that way.  This IVF process has not been easy on me physically.  As most people close to me know I am very sensitive to meds.  My body over-reacts to them most of the time and I get sick, my blood pressure plummets, and lose consciousness.  This last week there hasn't been a moment that I haven't been nauseous and feeling drained.  It's hard to eat because food seems so gross.  I almost feel exactly like I did when I was pregnant with Macy.  I am not sure if it's from all the meds I am taking to prevent OHSS, or maybe I have a mild case of it.  I just feel bad for Macy because I haven't been much fun this week, and she doesn't understand why.

Anyways, I'm really not complaining; it would just be nice if we didn't have to do this again.

So my nurse called today and our transfer is set for 8:30am tomorrow morning!  Our PGD results will be in late tonight.  We still won't know till we are there in the morning if we have anything.  Thank goodness for the valium they give you to take before-hand or I'd probably be totally freaking out all morning.  She did say that yes all 10 embies were biopsied yesterday and as of then were all doing very well.  She said they don't check on them today (day 4) because the less they are disturbed the better.

Guess I will try my hardest not to think about it tonight.  Please pray for us that we have something to transfer tomorrow.

take care,
Jenn

Thursday, September 13, 2012

Ugh!

So I carried the phone around with me all day today just like a teenage girl waiting for a boy to call.  Waited and waited.  Didn't even shower because I didn't want to miss the call.  It came around 3pm and I still don't know anything?????

The nurse said they don't know what time my transfer will be on Saturday.  They will need to talk to the PGD lab tomorrow afternoon and get an estimate on when the results will be in Saturday.  So she said our transfer could be really early in the morning or as late as noon.  They will call back tomorrow and let us know.

So I had to ask...how many did they biopsy today?  Did all 10 make it so far?  She didn't know.  She said that is on the lab chart and not the patient chart she had, but she seemed to think it was 10.  UGH!  Are you trying to give me a heart attack or what?  She said she would look into it and would call later today if it was any different.  5:15pm and no call yet?  I am hoping that means all 10 were biopsied and still doing okay, but don't know for sure.  I hope they have more details tomorrow because I am freaking out not knowing.

Trying to come up with a plan B of something "fun" we can do this weekend if we end up having nothing to transfer to keep my mind off it.  Sunday (16th) is Macy's actual birthday so maybe we'll do something special for her!  :)  If we do have something to transfer I'll be on bedrest but Adam will take her to do something fun.

2 days will seem like an eternity I think!  :)

take care,
Jenn

Tuesday, September 11, 2012

Fertilization Report

For those not on FB I wanted to quick update on here.  We received our fertilization report today.  They ICSI'd all 18 eggs, but only 10 fertilized.  Kinda a bummer, but what can you do, right?  I guess it could be worse.  The biopsies will be done Thursday morning, and they will call Thursday afternoon to let us know how the embryos are doing, and how many are still truckin along (hopefully all 10 still).

They will also let us know what time we need to be there for transfer on Saturday.  However, they will not receive the report on if there are any healthy matches until Saturday morning.  So we won't know until we are there for the transfer if we have anything to transfer.  I am hoping for atleast 1.  If we have nothing I'll be pretty upset.  Only time will tell.  Finger crossed. XX

Take care,
Jenn

Monday, September 10, 2012

Egg Retrieval Results

I'm not by my computer so I can't write too much, but the retrieval went well today!  They had to keep me a bit longer than normal because my blood pressure dropped to 83/55. That always seems to happen to me because I am really sensitive to meds. Anyways, they retrieved 18 eggs. Let's hope most were mature and fertilize. They will call tomorrow with the fertilization report. I slept till 8pm tonight, so I am pretty exhausted and in some pain.  Will update tomorrow after my report.

Take care
Jenn.

Saturday, September 8, 2012

ER Scheduled

The below may not be appropriate for children

Just got off the phone with the nurse.  I am triggering tonight!!  So egg retrieval is set for Monday.  However, they said my estrogen (estradiol) level is over 5,000 now so I am only taking half of the trigger dosage. I also have to take an Rx (baby asprin and Dostinex) starting today to try and prevent Ovarian Hyperstimulation, because I am at risk since my levels are so high.

Also, since it is so high we have to do assisted hatching with the embryos before transfer.  I am not sure what exactly they do with assisted hatching; just that it costs extra. (of course, haha).

This morning at my ultrasound I made it a point not to pay attention to how many follicles I had.  I don't want to stress over it, and we'll get what we get.  However, they did say I have "a lot".  And when the nurse called she again said "you have A LOT of follicles" so hopefully it'll all work out.  Also at my ultrasound they said my ovaries and everything looked really great, and that they couldn't look any better.  That's a good sign I think.

Trigger is precisely at 10pm tonight.  It will be my first intramuscular shot....ugh!  Not looking forward to Adam stabbing me with a 1.5 inch needle in the upper booty.  Guess I better get use to it though.  Might have to steal some of Macy's emla cream. :)  (jk).

take care,
Jenn

Thursday, September 6, 2012

Still Truckin Along

The following info. talks about reproduction and may not be suitable for children

I wanted to quick update this morning before Macy wakes up.  I had an ultrasound this morning and had one last Tuesday as well.  Originally we thought I would do the trigger shot tonight and have the egg retrieval on Saturday.  I went in this morning and my Dr. decided to be a little more aggressive with my cycle (because we need as many eggs as we can get).  So he increased my dose (after it was decreased last Tuesday), and we are pushing it out 2 more days.  So I go back for another ultrasound Saturday, will do the trigger shot Saturday night, and egg retrieval will be Monday now.

My estrogen level was 1700 last Tuesday (was 600 two days before that). I am interested to see what it was today.  He said if it is too high they will call later and change our plan.  Your risk of Ovarian Hyperstimulation Syndrome starts at 3500.  I am thinking my level is probably in the mid to high 2000 right now, and will probably be close to that 3500 mark by retrieval, but I guess we'll see.  Maybe it will level off a bit.

(UPDATE: Nurse just called and my E2 is already at 3400.  They are lowering my dose a lot now.  We will see what it is on Sat.  She said that means I should have a lot of good mature eggs...not sure what "a lot" means....hopefully we get 12-15 atleast; that's my goal).

If you count the one's that they are wanting to "push" to see if they will grow to be mature I have about 20 now.  More than likely those will not get big enough but you never know.  What you want is "mature" eggs.  Even if you get 20 eggs at retrieval if they're  not mature their useless.  And if they get too big and are over-mature; they are also useless.  So the timing of your HCG (trigger) shot, and retrieval are pretty vital to how many embryos you end up with.  I am glad my Dr. is being more aggressive than playing it too safe.

The more mature eggs = a better chance at having healthy matches = getting a healthy baby out of this (which we are beyond thrilled to have another child or two or three!) = a matched sibling donor for Macy = a real chance at extending Macy's life.  So it's a BIG deal.

I absolutely cannot wait for how the relief of this being a success will feel (whether it is with this cycle or the next one or so).  Talk about a HUGE weight off your shoulders.  Hopefully we have good news at my ultrasound on Saturday, and get lots of mature eggs on Monday!!!!

take care,
Jenn


Sunday, September 2, 2012

Macy's Bday Party! (and IVF update)

This isn't part of her birthday, but i had to add it because this is what she put on to wear out to dinner the other night.  I must say she was the only person there in 80-90 degree weather wearing a winter hat and a tutu dress!
Macy's birthday party was yesterday and I have to say she had a blast!  She knew the day was about her and loved it up!  We spent the first half of the day at the Air Zoo, and the kids seemed to really have a great time (and the adults too!).  We were thinking of maybe getting season passes so Macy could run around in there to burn energy on days that are too hot (we try to keep her out of the sun as much as possible due to the radiation and her extreme sensitivity to it that causes cancer), or a really cold winter day.  She LOVED the hot air balloon ride, and Adam and her went on it so much that the guy running it was like "you're riding this again?".....yup!  She didn't want to leave!  :)

The adults seemed to really like all the simulators.  They had a mission to mars one, and fighter pilot type one, and space mission one.  I didn't go on anything because my nurse said I can't do anything that involves bouncing or sudden movements (bc of the IVF).  But I really enjoyed the other parts, and watching Macy and the other kiddos have a great time though!


Macy is all smiles

Family Photo

Digging into the cake while we were all still singing happy birthday!

Mmmmm....

Having a blast!
We did all have a really good time!  

THE FOLLOWING MAY NOT BE SUITABLE FOR CHILDREN AS IT DISCUSSES REPRODUCTION

So I've had 2 ultrasounds since I posted last.  I wasn't overly excited about my ultrasound on Friday (it wasn't bad; just a little disappointing), so I decided to wait to see what this morning's was like.

Things seem to be going a bit better now.  On Friday I only had like 10-12 follicles.  9 that measured 8-10mm on the right, and 3 that measured 8-10mm on the left.  Then I had about 10 that only measured 3-4mm.  I was worried because you don't really know if those smaller one's (some or any) will catch up and be game players at all.  Since we only have a 19% chance per embryo that it will be healthy and also be a donor match for Macy we need as many as we can get to try and atleast have 1 to transfer.  So I was worried.

They called Friday night and increased my dosage of stimulation meds.  My ultrasound this morning was better.  My right had 5 at 11-12mm and 6 at 10mm, the left had 3 at 11-12mm and 3 at 10mm.  So between the 2 that is about 17 right now that are still in the running to becoming America's Next Top Model.  haahaha.  Just kidding.  Something about the way that sentence started off made me think of Tyra Bank's voice saying that.  If you don't watch that show (I actually don't watch it but have seen enough commercials) then you probably don't get the humor right now.

Anyways, things can happen so fast with IVF.  You can have lots of follies one day, and not a lot the next.  You never really know until the egg retrieval.  And even then they are not all going to grow after fertilized.  I just keep telling myself we just need 1!  My next ultrasound is Tuesday, then hopefully trigger on Thursday or Friday...then egg retrieval for this next coming weekend (8th or 9th).

take care,
Jenn