Macy

Macy

Monday, May 13, 2013

Yeah!!! Go Twinsies!

I had my 8 week ultrasound today, and both baby's are looking great!  Baby A measured 15.5 mm with a heartbeat of 170, and Baby B measured 17.5 mm with a heartbeat of 174! Everything is on track and looking perfect!  I have been officially released to my OB/GYN, and we are thrilled!


In recent Macy news; she has been staying home and getting healthy. She had her nephrology appt. last week and her horseshoe kidney is doing great!  No concerns. The bloodwork checking her kidney and liver were also great. Since she has been sick her platelets have dropped quite a bit. They were 178,000 before getting sick, and a month ago when she was sick they dropped to 116,000, and last week they dropped further to 113,000. Normal is over 140,000. We have been trying hard to keep her away from people lately so she can stay healthy enough for her platelets to go back up (since we are in a never-ending cold and flu season). Her next draw is at the end of June, and hopefully they will be back over 140,000 again.

As for me. I've been feeling decent. Tired, and some mild nausea that comes and goes. Lots of food aversions. Pretty much all food sounds gross except fruit. At this point in my pregnancy with Macy I had severe morning sickness; so so far the twins are letting me off easy!  Although that could change! :)

Take care
Jenn


Saturday, May 4, 2013

2 long years

I couldn't let today go by without posting something. Exactly 2 years ago was when Macy was diagnosed with Fanconi Anemia. The phone call that forever changed our lives.  I honestly can't think of anything worse than someone telling you your child is going to die much too early.

We have come a long way in 2 years. Our knowledge of FA and our hopes and dreams for Macy. It is really then, 2 years ago that our journey began to get pregnant with a sibling donor for her. When we found out this technology existed we kept saying "how can we NOT do this". It took a year of genetic testing, and almost a full year of back to back IVF cycles and finally this last FET. We are finally pregnant with twins, and even though its still early and there have been a couple bumps along the way so far with this pregnancy; I am still optimistic that it can work out.

If it is successful, and we end up with 1 or 2 babies which in themselves are a miracle, it means Macy will not have to have radiation with her bone marrow transplant, and that her chances of surviving, and surviving without complications is much higher. If everything goes well she will be cured of the blood disease part of FA; not FA Itself. But it is a big hurdle to overcome. We are hoping it will buy enough time to when Macy is in her late teens and early 20's (ages she is most likely to get cancer) that hopefully by then they will find a cure, or atleast have better ways of treating FA cancer patients.

I finally have hope, real hope that Macy will be okay.