Saturday, May 4, 2013

2 long years

I couldn't let today go by without posting something. Exactly 2 years ago was when Macy was diagnosed with Fanconi Anemia. The phone call that forever changed our lives.  I honestly can't think of anything worse than someone telling you your child is going to die much too early.

We have come a long way in 2 years. Our knowledge of FA and our hopes and dreams for Macy. It is really then, 2 years ago that our journey began to get pregnant with a sibling donor for her. When we found out this technology existed we kept saying "how can we NOT do this". It took a year of genetic testing, and almost a full year of back to back IVF cycles and finally this last FET. We are finally pregnant with twins, and even though its still early and there have been a couple bumps along the way so far with this pregnancy; I am still optimistic that it can work out.

If it is successful, and we end up with 1 or 2 babies which in themselves are a miracle, it means Macy will not have to have radiation with her bone marrow transplant, and that her chances of surviving, and surviving without complications is much higher. If everything goes well she will be cured of the blood disease part of FA; not FA Itself. But it is a big hurdle to overcome. We are hoping it will buy enough time to when Macy is in her late teens and early 20's (ages she is most likely to get cancer) that hopefully by then they will find a cure, or atleast have better ways of treating FA cancer patients.

I finally have hope, real hope that Macy will be okay.

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